In this episode, we chat with Lauren Shillinger, a fierce advocate for her children and the passage of Brynleigh’s Act for Seizure Safe Schools.
We talk about:
- Finding a cause of her daughter’s epilepsy
- Tuberous Sclerosis Complex (TSC)
- Traveling to Texas for brain surgery
- Learning to navigate the system
- Turning grief and energy toward rare disease advocacy
- The TS Alliance and her work with the Maryland chapter
- Brynleigh’s Act for Seizure Safe Schools
- Ways to introduce legislation
- Giving back and finding hope
- The joy found in paying it forward
Related episodes
Families That Advocate Together Stay Together with Laura Hatcher
Changing Spaces and Creating Hope with Christina Abernethy
Links
Maryland General Assembly - HB370
Maryland General Assembly - SB225
Find your Maryland Representatives
Amanda Gorman, Youth Poet Laureate, has speech and auditory processing issues
Here is a link to the Ways and Means Testimony:
https://mgaleg.maryland.gov/mgawebsite/Committees/Media/false?cmte=w%26m&ys=2021RS&clip=WAM_1_20_2021_meeting_1&url=https%3A%2F%2Fmgahouse.maryland.gov%2Fmga%2Fplay%2F27af1e6c-5d8d-45d5-b48f-3a938fab202c%2F%3Fcatalog%2F03e481c7-8a42-4438-a7da-93ff74bdaa4c%26playfrom%3D3007217
Prayers for you, Matt, and your precious little family. God is good and in control. A glorious story of his grace. Emalee Micheil Wilbert