Motivated to Advocate with Lauren Shillinger

Lauren Shillinger

In this episode, we chat with Lauren Shillinger, a fierce advocate for her children and the passage of Brynleigh’s Act for Seizure Safe Schools. 

 

We talk about:

 

  • Finding a cause of her daughter’s epilepsy
  • Tuberous Sclerosis Complex (TSC)
  • Traveling to Texas for brain surgery
  • Learning to navigate the system
  • Turning grief and energy toward rare disease advocacy
  • The TS Alliance and her work with the Maryland chapter
  • Brynleigh’s Act for Seizure Safe Schools
  • Ways to introduce legislation
  • Giving back and finding hope
  • The joy found in paying it forward

 

Related episodes

 

Families That Advocate Together Stay Together with Laura Hatcher

 

Changing Spaces and Creating Hope with Christina Abernethy

 

Links

 

Maryland General Assembly - HB370

 

Maryland General Assembly - SB225 

 

Find your Maryland Representatives

 

Kindness is Golden book

 

Amanda Gorman, Youth Poet Laureate, has speech and auditory processing issues

 

Low Intensity Support Services - LISS

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